Sunday, July 29, 2012

Estella and Spinal Muscular Atrophy Type 1 - YouTube

Estella was a beautiful baby girl who passed away from Spinal Muscular Atrophy Type 1, aged 8 months.
This video was created to tell Estellas story.

Follow her on twitter

Please sign the petition and campaign for screening.

Find out more about her here;

or here

or finally here

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