Sunday, July 29, 2012
Estella and Spinal Muscular Atrophy Type 1 - YouTube
Estella was a beautiful baby girl who passed away from Spinal Muscular Atrophy Type 1, aged 8 months.
This video was created to tell Estellas story.
Follow her on twitter www.twitter.com/estellastar1
Please sign the petition and campaign for screening. http://epetitions.direct.gov.uk/petitions/25997
Find out more about her here;
or finally here