Sunday, July 29, 2012

Estella and Spinal Muscular Atrophy Type 1 - YouTube



Estella was a beautiful baby girl who passed away from Spinal Muscular Atrophy Type 1, aged 8 months.
This video was created to tell Estellas story.

Follow her on twitter www.twitter.com/estellastar1

Please sign the petition and campaign for screening. http://epetitions.direct.gov.uk/petitions/25997

Find out more about her here;
www.bluebellwood.org.uk/estella

or here
www.smashsma.blogspot.com

or finally here
www.facebook.com/estellameansstar

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