Sunday, July 29, 2012
Estella and Spinal Muscular Atrophy Type 1 - YouTube
Estella was a beautiful baby girl who passed away from Spinal Muscular Atrophy Type 1, aged 8 months.
This video was created to tell Estellas story.
Follow her on twitter www.twitter.com/estellastar1
Please sign the petition and campaign for screening. http://epetitions.direct.gov.uk/petitions/25997
Find out more about her here;
www.bluebellwood.org.uk/estella
or here
www.smashsma.blogspot.com
or finally here
www.facebook.com/estellameansstar
Labels:
awareness,
Babies,
e-petition,
screening,
SMA,
Spinal Muscular Atrophy
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